My mother is dying of cancer. From the looks of things, combined with my extreme lack of experience with cancer, or of death, I think she has anywhere from a few days to a few weeks left. Or maybe a month, but I hope not, because this is no life.
I wish I had written sooner. I wanted to record my feelings as I went through this, so it might be of some help for me when I grieve in the future. But it is very hard for me to write about my denial, and then shock, and then determination, and then despair.
She’s my mom! My pretty Momma. The woman who was always there is now mostly gone, though some of her is still here, like when she was fighting me just now. I’m trying to get her into the bathtub, because it’s the first time I’ve seen her stand in 24 hours. But she won’t go. And what power she yet yields! It makes me smile.
And so yes, the despair is gone and now I have an immense sadness, and an awed sense of beauty and love.
I am so very lucky and grateful to have spent Veteran’s day weekend with her, and then Thanksgiving. It was shocking to see the vast changes from the middle of November to the end of November. During Thanksgiving she asked me to help her write her living will. She has a terrible fear that she will be taken to the hospital, because she does not want to die in a hospital. So, I was sitting beside her on the couch, the Friday after Thanksgiving, and she was asking me to read and explain things to her. She made a few notes to herself, so she could go ask her doctor about them. Her pen hovered above the paper for a moment, and she made a curve in the air with her finger, then turned to me, “Sis, how do I make a question mark?”
It’s the loss of her clear thinking that I did not expect, and that I have the hardest time dealing with. My mother, who has written long, detailed letters her entire life, couldn’t remember how to make a question mark. During that late November week, she had frequent periods where she would fade out, and fade back in with conversation from a different topic. But I could talk myself into believing it was because of her fatigue, or the pain meds. I talked with her on the phone December 3rd. She drifted and stopped talking a couple times, but it was still very easy to communicate with her.
But now, she speaks only a few words a day. Maybe she’ll say “no” or “water,” but that’s about it. And as vastly helpful as those few words are, I sense they will not be around much longer. I remind myself to transition to non-verbal communication.
She hears just fine, though sentences are often too confusing for her to understand. But simple ideas get through. “My beautiful Momma,” I said to her, as I stroked her hair, and though her eyes had been closed, she smiled. It was so wonderful to connect.
P.S. My mother and her husband Jim do not have health insurance, and she’s too young for Medicare. I made a website to solicit donations. There is also a prize for one person, whose name I will draw from the donators. So, even if you don’t know us, maybe you’d like to have a little holiday fun for a good cause. Please see the website.